Friday, April 20, 2007

day minus 21

ok, so you're with me. we're on day minus 21, twenty one days from day zero or transplant day.
Kathleen here. Wrapping up the day. Eleanor and I arrived at about noonish today and went straight to the Hutch center to meet up with mom, dad and Cathy (the blue team)
Eleanor and I went up to the 6th floor and found mom and dad there in the very large waiting area as margie had just come out of having a bone marrow biopsy and was sitting in a recliner trying to rest. Her hair is growing back in and frankly looks fantastic. When I'm back to my own Mac, I'll post a couple of pictures but for now all of you will need to feel satisfied with the fact that her hair is salt and pepper, about two inches long and fab-u-lous!

Before the bone marrow biopsy today was a blood draw (9 vials!) and an EKG. Then onto the biopsy. This is the fourth one and is still perfecting exactly the right meds to get the comfort level right without being completely spaced out on it.
This time around, she started out with Adavan and then got to partake in her first
Fentanyl lollypop. I've read about this particular pain med and am aware of them.
The lollypop did the trick this time and Margie was feeling pretty good about this new discovery. After some relaxation in the chair, it was time to go back to apartment, take a nap and get some dinner before heading back to the island for the night. Margie's already making us laugh through all of this, in the elevator referring to the procedure as a bibopsy and saying that she told Mike the night before that she was going in for some bone meal. Sounds like these lollypop's are the way to go, alright.

Margie got a nap for a couple of hours, seemed very refreshed and we heading out to dinner at the Outback not far from the apartment but we never made it due to her temperature going up in the car (101 f) so we went back to the apartment, she heard from the Doc and she and dad headed back to the hospital so she could get checked over and have her white blood cells check as to rule out infection. So, Cathy and Eleanor and I went and got Pizza not far from her at Pagliachi's (recommended!)
So, we came back and ate, and margie and bob returned after about 1 1/2 hours where they finally had something to eat. So, we're here now since she's got to monitor her temp tonight and be nearby the hospital if it goes up. No island tonight.
Mom's jotting down her thought and will likely post soon-
Love to you all,
Kathleen

1 comment:

  1. Dear Mom, "Hi"! WOW!! You really are being put through the ringer. I hope all of your hard work exercising and getting yourself back into good shape will pay off by making you stronger to hold up to all of this. It has to help. I wish we could wave a magic wand so each of us could take some of the discomfort and tiring experience from you to lessen your load. It's really frustrating to know that someone we love so much has to endure all of this. It sounds like you are in good hands, all things considered. At least you know that the Hutch is a world class facility that is on top of all the cutting edge research and treatment options for what ails you. It must be wonderful to have Kathleen and Eleanor there for a visit. Any word yet on when Debbie is coming? I'm sure it helps Dad to have some back-up. Please tell him "hi". I meant to say that in my last communique and I forgot. It must also be a comfort to have Cathy there. If all goes as planned she will literally give you a new life, a brand new immune system to carry you through the rest of your life. What an awesome thought! Can you imagine how pleased your parents would be to know of this gift. One that they made possible for you to receive and for Cathy to give by their decision to have a big family. Life is filled with unexpected twists! I hope the Hutch gives you enough time to recuperate between all of these procedures. What was the fever all about? Are you better now? I sure hope so. Please know that our hearts are there with you. We are holding the most hopeful and positive thoughts for your complete cure. If anyone can beat this thing, you can! We have complete faith in your strong spirit and hearty constitution to endure whatever comes your way. We love you so very much, Susie, Eddie, Dashiell and Sully

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