Maybe in a week?

Sometimes, fair reader, it is very hard, dare I say taxing to write things about Margie that are negative, her progress slow, and not necessarily what you or I really want to read. But alas, I aim to write reality and sometimes reality is not the nicest thing to read and not always the pleasant, upbeat posts that we might all like to find before us. (a prime example would be Margie's previous rash, wouldn't it?)

I'll just recap my conversation with her this evening. As she and I have discussed many times, she wants this blog to be about what IS. This is what's happening now and the reality of it is, cancer sucks. So, here we go:

The doctors tell her she's sleeping too much which is caused by the anti nausea medication, which she takes because of the immunosuppressants that cause her to feel nausea. So as a medication adjustment, they're cutting back on the immunosuprressant, cutting back on the anti nausea meds and she should be able to not sleep so much.

She feels miserable and weak. I must say that for Margie to actually say this means that she is feeling about 100 times worse than what she is saying, as she is not one to complain. But, the medical staff reasures her that she is "feeling day 12", and this is normal (which of course is great) Margie did have someone finally throw her a bone today and told her that she may start feeling better in a week or so-finally a little light!

The medical staff told her to eat more protein and drink more, but very hard to do right now because it's hard for her to be interested in any food at all. All of it and even the thought of it makes her sick. Coordinating the medication and eating are a "real pain" as she says.

She's being told she needs to walk more, which is hard as well because she has pain just standing up. So, she's trying to walk to and from the front door of the apartment and then again later in the day.

She'll likely have her next bone marrow biopsy in the next week or two, I'll keep you posted on any new information there.

Greg's father stopped by to meet Margie yesterday. Dr. George Sales and Margie have spoken many times since her diagnosis and it turns out he is just as lovely in person as he is on the phone.

Overall, what to take from this is that she's where she's supposed to be right now. Unfortunately, she feels horrible and has for some time so it's not been easy to stay up-beat. I'm hoping that she'll begin to feel better as soon as possible and just that small amount will give her encouragement I'm sure.

Thanks for staying with it. It's hard to keep reading and watching, I know. Please keep commenting, I know Margie really appreciates everyone taking a moment to comment on the blog

Love Kathleen