"Everything is good, but I feel awful"
Those are Margies words this afternoon.
I was reminded by Lara this week to post what transplant day we are on. Thank you Lara:
Today is transplant day 21
Margie was told today that she is "solidly engrafted" Which is of course all fantastic, it's just too bad she feels so lousy.
I asked her how they know this little tid-bit about the engraftment, and here's what she said:
The "ANC" numbers which are part of the white blood cell numbers. They look for hers to be at about 500 and hers are currently at 2000. This makes for a strong immune system. The platelet numbers are in a normal range and the other blood numbers are all strong.
Unfortunately, she is "past the time that she should be feeling better" This is likely caused by the fact of the problems with the food and the pill intake- she still gets sick a lot and she's not taking in enough protein. I know I don't have to re-explain all the food/pill/vommit issues and we all know what a vicious cycle food/nausea can be.
She met with the nutritionist to try to further explore how to get more protein in her, but I'm sure it's very frustrating due to the fact that she just doesn't want it and the inevitable "reaction" she gets. Who would?
But, Margie's spirits are up as always, she's just waiting and hoping she'll feel "just 25% better" as she says.
Hopefully, that 25% and more is just around the corner.
Love, Kathleen
I am so happy that it is turning out
ReplyDeleteso well.When mom told me that the
doctors had said they never had a
case like hers before it was a shock.
good shock though.One of the people i know that cant eat much takes the
ensure shakes.Has she tried it or will she not be able to keep it down?
take care and we will be praying for
you margie.
love , rachel
Hi Rachel- she actually got the recipe from the nutritionist last night for the "shake" that she had at the hospital that she really enjoyed- 18 grams of protein!
ReplyDeleteensure
ice cream
2 table spoons powdered milk
put it in the blender and freeze-
sounds good to me- I don't know what the proportions are but it sounds like a good one to make for my kids after school- yummy and packed with protein. Dad used Hagaan Daaz Ice cream because of it's high protein-
Hopefully she can put down a couple of these a day and increase the protein that she's taking in.
thanks for checking in
Love,
Kathleen
hi everyone i´´m in mexico and having the time of my life i love it we felt residue from the hurricain alot of rain and wind we pretty much layed low every night we get incredible thunder storms and we have a fabulous view of the water, i am so very blessed, i love you all so much i rode a quad though the muddy jungles of mexico for six hrs got absolutly mudded out to the max. Margie i love you my sweet sister, and ive been thinking of ya and praying for you God bless you cathy
ReplyDelete