Friday, June 1, 2007

baa baa black sheep, have you any wool?

Yes sir, yes sir, six bags full...

Ok, I'm the mother of a toddler and that's a line from a nursery rhyme.

Well, Margie's got SIX (or more) i.v. bags hanging and hooked up to her right now. Dad! take a picture of that one!

I don't have a lot of the particulars but we know she's hooked up to potassium, vancomyacyn, blood product and various and sundry fluids.

Here's a report of pretty much miscellaneous of the past couple of days, in no particular order:
-on and off Big D, though much improved (yay!)
-plenty of fluid output due to the lasix to relieve the edema (sometimes too much as she's in the head all night!)
-the dreaded mouth sores. Eating activity starts with medication for her mouth so that she can swallow anything with less pain.
-some heart irregularities so they are watching her on and off with a cardiac monitor
-watching lung activity: since she had a problem a few days ago. 2 litres of Oxygen (according to my notes-don't know when)
-has tested positive for grand positive cockxy ( I don't know what that is, nor can I spell it!) but it's a bacteria. sounds creepy
-nausea when faced with eating/food activity (sounds like food is pretty much a nightmare right now)
-getting all blood product right now due to her numbers being expectedly down from the chemo.
-In three days she'll get a biopsy: this'll be a big one to determine remission
-told Cathy this morning that all these symtoms could get worse/more in the next few days.

two steps forward....one step back.

Her numbers are bottomed out right now, so no visitors. Besides dad, can't risk introducing some germ into her environment.

Big kudos Margie: She is literally doing circles around the nurses on the floor. By that I mean that she walks circles around the nurses station every day, yesterday reporting that she clocked a mile and a half!! One of the nurses told her what a great job she's doing with the walking and staying active. the nurse said they have to sometimes "drag patients asses out of bed"
to get them moving, it's SOOOO vital to recovery. Our bodies have to MOVE!

Way to go Marathon Mom!
Margie has an incredibly, powerfully positive outlook and attitude. She know that without a doubt this is the way through this to the otherside and onto the next part of her life. It's a real honor to be able to listen to her on the phone and I'm so struck by all that stuff of which she's made! Pure Grace.

I've got an art show this weekend in which I'll be selling ALL of the paintings that I'll have there (actively practicing the power of positive thinking, lest you think I'm that self absorbed!) , so I'll be off the posting for a couple of days unless there's something that needs to be reported. Maybe Cathy or Margie will blog...

Shameless self promotion section:
you can see my work at : http://www.katesalenfriend.com

Have a wonderful weekend and especially Margie,
Love
Kathleen

p.s. I've been typing up some poetry for Parker's 3rd grade class this week for an end of year project and one of the girls poems was just beautiful. There was one particular line in which the imagery just took my breath away. Her name is Laura:



"My heart is knowing
How to dream of
Dancing roses"

No comments:

Post a Comment

if you must...

 
eXTReMe Tracker