Day 57 Post Transplant

Another list of bits and bobs, in no particular order:
-last tuesday had another lumbar puncture- these will be every two weeks and also found out that during the puncture, a wee bit of chemo is injected as well. (the spine is seperate from the systems of the body, so they have to treat it differently)

-Margies prednazone dosage is going from 55mgs daily down to about 30 and then will be tapered off to zero.

-physical therapy: "I needed it more than I realized" Margie has to work on simple excersizes like raising and lowering from a chair. She is walking again, trying to walk daily. Thursday for about an hour, and has to work on the "assigned" excersises daily as well. The prednazone has a detrimental effect on the musculature of the body, so it's doubly important that she stay active.

-meeting with doctors on tuesday and they reported that they were "thrilled" with her progress thus far.

-she's still working with a nutritionist on the food/pill taking challenges and feels like she's making a little progress, especially since she finally stopped vomiting with the help of the prednazone and the GVHD meds (which she will stay on for the time being)

-Margie was happy to report that her weight is where it should be. As the petite flower that she is, of course it's always a negative when the weight creeps up, even if it is a side effect of something (besides eating too much) So, I know she feels really good about being at her ideal weight.

That's it for this week, I'll post again in the next couple of days.

Love, Kathleen